'However it comes'

I have received support from carers, support workers or personal assistants for nearly 14 years. During this time, my package of support has come in many forms, from 4 times a-day domiciliary support to my current support of a 24-hour provided by a nurse-run agency. However, it wasn't until a couple of days ago, when I was asked how I liked my porridge, that I replied, 'However it comes'. The worker then asked as to why I don't have a preference I explained that I did; however, I have come to 'accept' that I have to take it as it comes whether it's too thick, thin, too hot/cold or for me, who's weird enough to have cinnamon in their porridge, whether there's enough of it. Even though now there's no time pressure as it's a 24hr package.

There have been many instances where I've had to accept things as they were simply because there wasn't time to remake/change something, and I couldn't do it myself. I could feel the staff's pressure to move on to the next person. Perhaps my greater understanding of the social care situation than most users only added to this knowledge.

Thankfully, I am not too fussy an eater, so having food/drink prepared in a slightly different way wasn't the end of the world for me. However, for those who struggle to voice their preferences or what they have a strong dislike for, food and drink will be prepared and left untouched. This not only means they won't be receiving the necessary nutrients and fluids but also wastes money and food for the individual. It's a concerning situation that needs attention.

As I was discussing the situation, I realized, like I do far too many times, that I just accepted it, kept my head down, and didn't want to cause any problems. After all, carers came into my house, providing me with care and support, which so many people cry out for up and down the country. But, I would be horrified if I had heard from someone else that they are just grateful for the support they receive. They felt they couldn't express their wishes in something as simple as food and drink preparation- something the body relies on to keep people well and out of the hospital. The impact of unvoiced preferences on an individual's well-being cannot be overstated. It's not just about the food or drink; it's about the dignity and respect that comes with being able to express one's preferences.

The question that arises is where does person-centred care fall into this? Do time pressures take precedence over the individual? Is the balance right? These are essential questions that require thoughtful consideration.

These are a few questions that I invite you to ponder upon. Your insights could contribute to a more balanced and person-centred approach to care.

'However it comes'